The Canadian PKU Registry

What is the a patient registry?

A database that stores information about a group of patients who have the same disease.

What should i expect?

You and your caregiver will complete surveys about your health.

Who can join?

Caregivers sign up on behalf of patients diagnosed with PKU, 18 years old and younger, receiving healthcare in Canada. 

Participation is voluntary. 

If you have any questions, please contact registry staff at pkuregistry@cheo.on.ca